A Voice of Empowerment and Advocacy in the Rare Disease Community
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After the publication of Nell's book, her story was featured on the CBS evening news with Norah O'Donell. See the video clip below. She and her fifth grader writing teacher are interviewed because it was her teacher that encouraged her to publish her book.
Her book is now available for purchase on Amazon at the following link.
featured on
CBS Evening News
Cross talk: Conversations with Kurtis
featured on
Demystifying NMO & MOG
Podcasts & Events
Wait How Do You Spell That: A rare disease podcast
Spoke at the Sumaira Foundation for NMO’s SoCal Patient Day @UCLA
Attended and spoke at RareArtist Reception during Rare Disease Week on Capitol Hill
Ambassador to the Sumaira Foundation for NMO
Read My Featured Story on the Sumaira Foundation website
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