what started as one book became a mission. After being diagnosed with a rare neuroimmune disease at age nine, Nell wrote My hospital story to help other kids feels less alone during long hospital stays. Today, the book is used in hospitals, medical training programs, and patient support gropus across the country. 

Now, Nell is expanding the project to reach even more children. She's working to distribute books to hospitals nationwide, create a companion workbook for young patients navigating chronic illness, and continue advocating for policies that improve care and research for rare pediatric disease. 

Because no kid facing a rare diagnosis should feel invisible. And every story has the power to change the future.

My Hospital Story,
Rare Voice Initiative